What We Do
The National Family Council on Sepsis supports the work of the Rory Staunton Foundation for Sepsis Prevention. The Foundation was established in 2012 following the preventable death of 12-year-old Rory Staunton from sepsis and works at the federal, state, and local levels to improve public awareness of sepsis, increase access to sepsis education for students and caregivers, and to advocate for the adoption of mandatory sepsis protocols in hospitals.
The voices of those who have been impacted by sepsis are an immensely powerful tool in the movement to combat preventable deaths from the condition; they have the power to make elected and appointed officials listen and act on sepsis policy measures, to help healthcare professionals understand the patient experience and remain vigilant to the threat of sepsis, and to educate their communities about the signs of sepsis and the toll it takes on families. With members in 36 states, the National Family Council works alongside the Foundation to promote the adoption of improved sepsis policies, raise awareness of the condition, and support grieving families and sepsis survivors on the long road to rehabilitation. There are many ways to be involved as a member of the Council. Contact us to find out how you can make a difference.
In 2013, New York State became the first in the nation to adopt mandatory evidence-based guidelines for the development of sepsis protocols in every hospital in the state. Known as Rory's Regulations, these protocols are successfully lowering sepsis mortality rates in New York. With critical support from the National Family Council, the Rory Staunton Foundation is working to see Rory's Regulations adopted in every state by 2020. Council members on the ground in each state are empowered to petition their elected and appointed officials to adopt the regulations. The voices and stories of the Council are critical to this process–state officials want to hear from their own constituents and your stories can help them truly understand that sepsis is a public health crisis that shatters families and disrupts communities. To learn more, visit our #SepsisSafe page and get in touch to see how you can start a campaign for sepsis protocols in your state.
Sepsis advocates know that knowledge is power. The mortality rate from sepsis is catastrophically high because so few people are aware of the condition, its symptoms, and the fact that it is a medical emergency. The Rory Staunton Foundation and the National Family Council educate the public in a variety of ways, including producing public service announcements that can be shared online and at events and fundraisers, generating media attention for the issue of sepsis, collaborating with federal agencies on sepsis awareness campaigns, working towards the adoption of our sepsis education modules in elementary, middle, and high schools, holding community awareness and education events, and much more. Contact us to get involved!
Support for Families
The National Family Council connects grieving families and survivors of sepsis, providing support and sharing resources. We are also committed to expanding the Families and Medical Leave Act, which ensures job-protection and unpaid leave for employees with qualified medical and family issues, to increase bereavement coverage.
The National Family Council also plays an important role in fundraising so that we can continue our lifesaving work. Enterprising members have organized a variety of events and campaigns that both educate the community and raise much-needed funds. 5K fun runs, tag sales, crowdfunding campaigns, and marathon sponsorship are just some of the ways the Council has contributed to providing financial support for our campaigns. Got an idea for a fundraising event or campaign? Let us know!